Pt. 2 The sequel

We got the MRI and PET/CT results.  The cancer is diffused throughout her body.  Bones, brain, liver, lungs.  The bone metastases — or mets, as it’s known by those of us in its throes — are in her femur, sacrum, spine, and sternum.   Jesus fucking Christ.

Milly has lost her vision.  She’s been suffering an extreme amount of pain.  She’s been on morphine for a week and the pain is now mostly under control.  We’ve started radiation treatment for the brain and bone mets.  There’s a chance she may regain some of her sight.

We’re in good spirits.  Our tight knit community of Burning Man friends has closed ranks and surrounded us with loving care.

fuck cancer

Milly’s cancer has metastisized to her brain and eyes (choroid) and possibly her bones.  Diagnostic imaging has yet to be completed.  We should know more by Monday.   This changes everything.  Fight on we will.

 

repositories for the rest of us

Back in the day I used infodiva.com to write a blog called repositories for the rest of us.  I stopped that when I was hospitalized for a few months in 2009 (I’m fine now, thanks for asking!).  I needed to remove anything non-critical from my life while I healed.

I never really paid too much attention to the readership statistics.  I pay attention to the track-backs either.  Interestingly enough, this installation of WordPress shows the track-backs to rep4rest posts, even though that blog was hosted on another platform. Links to infodiva.com still be links to infodiva.com.

Thanks to the Wayback Machine that content is still around.  I think I’ll post some of the content from the old blog here, in the interest of redundancy (a good digital preservation practice).  If people thought it was interesting enough to make links, then it’s probably worth re-posting for some form of posterity.  Who knows.  Maybe it will spark some new thinking on the topics and generate some original and current posting.  It can certainly help me continue to put up content here while we deal with M.’s cancer.

 

Bikram

I returned to Bikram today after a 3 week hiatus.  No excuses.  I was lazy.  It’s tough.  The heat kills me.  And I have some structural issues (who doesn’t?) which make certain poses incredibly painful.  Ok, make that all of the standing poses.  My feet are highly supinated.  They don’t like it when I distribute my weight evenly vs. rolling onto the outside. My natural positioning has the effect of making my feet splay out and my legs rotate.   When I have to balance on one leg, I can do it no problem if I can roll onto the outer edge of my foot.  But that’s not the right way.  The right way, with the weight distributed and my big toe doing its share of the work, makes me very unsteady.   I’m slowly building up my strength in that toe and in the muscles within the arch of the foot.  Meanwhile I wobble.  And endure hot burning pain.     Why do I do this?  Because my mis-alignment leads to overuse injuries when I do other sports.   If I get my body to do things correctly, then perhaps some magical day in the future I’ll be able to return to running.    My dog Keen-O would certainly appreciate it.

best intentions & all that

Life threw a curve ball just as I made the promise to blog here more.  M. was diagnosed with stage 2B breast cancer and we’ve been dealing with everything that entails.   Her prognosis is good and she should recover completely cancer free.  It’s just going to really really suck for awhile.  Surgery was successful and we now embark on 18 weeks of chemotherapy and 6 weeks of radiation.  I don’t know how much blogging is realistic in this forum.

I have been doing more with my work-specific blog.  The day-gig has been going quite well of late and I have more interesting things to share.  It’s nice to have something to focus on besides our health opportunity.

I’m back

infodiva.com hasn’t had content to speak of since 2007-8.  i was messing around with Drupal and the PITA factor was high.  I didn’t have a lot of time to spend since I stated working at Caltech.  Life’s just been weird the past few years.  I can’t really stay away from blogging though.  Don’t know yet how frequently I’ll write or, for that matter, what I’ll write about.

For now, I’m futzing around with blog design and optimizing the metadata.  Cause that’s what I do.